This is a poem I wrote about how M.E has affected my life:
Running, jumping, laughing, skipping
Fields, playgrounds, icecream dripping
1o clock, 2o clock, 3o clock, 4
What time I got in mattered no more
Uni, family, friends and work
Essays, portfolios, what a nerd!
Walking, hobbling, a crutch or two
Fatigue, spasms, crawling to the loo
A foggy cloud hanging over my head
Those darkest moments I wish I were dead
Sitting, standing, it all feels the same
Each waking moment consumed with pain
Diary filled with doctors and clinics
Who see 'M.E' and think we're all dimwits
My world has shrunk from what it was
But I wouldnt change it because...
I've made so many amazing friends
And this is far from where it all ends....
Me in my wheelchair on a rare occasion I get outside =)